Living with FCS

Who are we

LivingwithFCS.org is the site for all Familial Chylomicronemia Syndrome (FCS) patients, caregivers and family members that offers information, resources and support.

 

About FCSDonate
Getting Involved

Be a part of our FCS Community

Meet our Medical Advisory Board

 Check out the NEW profiles of our Medical Advisory Board.

Check out our facebook page

We are an active group online.  Check out our Facebook page to see what we are up to and how we are advocating for those Living with FCS.

CNN features FCS Foundation and the HEART act

CNN features FCS Foundation and the HEART act

CNN interviewed FCS Foundation's co-presidents Melissa and Lindsey about the #TheHeartAct2020. It was an honor to share our journey with them. The FCS community is so proud to support this legislation and work alongside so many #raredisease groups, including the...

Get Involved

As we work with those Living with FCS – we sometimes need your help.  Contact us to find out how you can get involved..

Upcoming Events

Learn

What is FCS

“Familial Chylomicronemia Syndrome (FCS) is a rare genetic disease which can have devastating effects on its victims,” says Dr. Seth Baum, a preventative cardiologist who specialized in FCS. “The creation of the FCS Foundation will provide patients, caregivers, and healthcare providers the opportunity to identify and support best treatments, disseminate meaningful lifestyle management tools, and develop more accurate diagnostic systems for individuals going forward.”

FCS signs and symptoms

Familial chylomicronemia syndrome (FCS) is genetic, which means it is always with you. The age at which patients first show symptoms and the types of symptoms they experience may vary. Some people may have noticeable warning signs of FCS when they are young. Others may not feel anything until adulthood.

About This Website

LivingwithFCS.org is a site for all Familial Chylomicronemia Syndrome (FCS) patients, caregivers and family members that offers information, resources and support. The goals of this site are to build connections and offer resources and support to help FCS patients become informed advocates for themselves and their disease. This website will share new developments and information to help patients and families on their journey and is focused on helping to build the FCS community through providing a forum for patients to meet, exchange questions, share challenges, and offer support to one another. Global Genes is able to produce this site with an unrestricted educational grant from Akcea Therapeutics.

Skip to toolbar