Living with a rare, chronic condition has both emotional and physical challenges. Equally important is the role of caregiver in the FCS community. Making connections with others can provide an excellent source of support and information. Following are support resources that also will help patients meet other patients and advocates.
FCS Social Media
Care Action Network
http://www.rarecaregivers.org/
National Alliance for Caregiving
www.caregiving.org
https://www.facebook.com/NA4Caregiving/
Patients Like Me
Recent Comments